Program awards scholarships to students that are blind, low-vision or have a physical disability pursuing higher education. Scholarship fund for college bound students of single parent homes due to a loss of a parent or guardian, due to breast cancer. All applications are de-identified prior to review, and will be evaluated using a scoring rubric by a panel of Sanofi employees who are familiar with the rare disease community but do not currently work in the space. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. Program offers annual scholarship to a high school senior accepted into a Learning program at the University of the Ozarks, Arkansas. Program offers awards to students with a parent diagnosed with ALS, continuing their education. Rheumatoid Arthritis, Multiple Sclerosis, Hepatitis C, Crohn's Disease. Awards scholarships to students diagnosed with Hemophilia, Von Willebrand disease or other bleeding disorder. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. Contact NeedyMeds if you find any content errors. Program provides a scholarship to high school students that have shown exceptional levels of achievement and are planning to attend college or a university. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. Mary graduated from Wayne State University with a degree in journalism. Program offers scholarships to individuals who have been affected by mesothelioma. Living with a rare disease can create many challenges accessing education shouldnt be one of them. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Autism, Asperger Syndrome, Pervasive Developmental Disorders. Program provides scholarships to one female and one male student athlete who are legally blind pursuing a higher education. Program provides 9 Scholarships of up to $10,000 awarded to individuals with a dermatologic conditions seeking higher education. Provides a scholarship to a high school, undergraduate or graduate student who has cerebral palsy. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Provides a $2500 scholarship awarded to children of firefighters killed in the line of duty planning to attend a university, accredited college or other institution of higher learning. Program offers educational funding for cancer patients and cancer survivors to continue their education. Program offers financial support scholarships for exceptional students living with a chronic inflammatory diseases. Spinal Cord Disorders, Spinal Cord Injuries. Program provides scholarships for student athletes who have sustained a life changing accident or illness pursuing higher education. Children with a parent wounded, disabled or killed in military service, Military related, Disabled - Veteran. A scholarship for high school seniors that are hard of hearing. An educational scholarship for college students with a family member or loved one suffering with a disability. Program provides scholarships for students with heart disease or deformities pursuing higher education. Provides awards to individuals with Down syndrome ages 18 or older, who brings public awareness to their community. Program awards scholarship to select undergraduate students who have experienced the devastating loss of a parent or caregiver to suicide. Provides a scholarship to a student affected by cancer. A scholarship for young adults who have been affected by cancer and are seeking higher education. A GPA of 3.0 is required and commitment to extracurricular activities. Program offers a scholarship to a high school senior who is hard of hearing and continuing their education. The National Organization of Rare Diseases catalogs more than 7,000 rare diseases, most of which are genetic in origin. A scholarship for a college/university student with a disability, who is making a positive difference in the lives of other students who are struggling to maintain their mental health. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. Bleeding/Clotting Disorders, Hemophilia, Von Willebrand Disease. This list includes both the main, and any alternate names for each disease. Special Needs, Disabilities - All, Childhood Disability. Now, thanks to the #Rareis scholarship fund, we can help patients not just to live with their disease, but to thrive.. Program awards multiple scholarships to undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. Program awards scholarships to those whose lives have been altered due to injury while serving in the United States Armed Forces. Cancers, Ewing's Sarcoma, Childhood Cancer. Ten grants are awarded to students with Down Syndrome 18 years of age or older. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Programs provides an annual scholarship of $500 for up to 4 years, to a graduating high school student diagnosed with stickler syndrome. Foundation for Rare Diseases. Program awards a $1,000 scholarship to applicants who are cancer survivors who value the importance of education and show it with perseverance and determination. Janet Woodcock, M.D. Scholarship offered to students who have been affected by addiction that are pursuing a medical-related course of study. Program awards scholarship to a student entering college who has been affected by leukemia. Program provides financial assistance of up to $500 to attend specialty camps for children affected by chronic illnesses. Program provides scholarships to high school seniors or undergraduate students with cystic fibrosis. Program provides scholarships to high school and college students who have a demonstrated learning disability of dyslexia, and who wish to pursue a career in science, technology, engineering and math (STEM). Hemophilia - Inhibitors, Hemophilia, Blood Disorders, Von Willebrand Disease. This scholarship is for students pursuing a STEM major. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. Program awards scholarships to men and women with hemophilia and an inhibitor seeking higher education. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Cancer - All in a loved one, Child with a parent or sibling who has or had cancer, Childhood Cancer. The #RAREis Scholarship Fund was established in 2020 to help adults with rare diseases to pursue their dreams through education. Scholarship awards from $500-$2000 to subsidy college education for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. Program provides a scholarship to a high school senior with an identified learning disability pursuing higher education. Child with a parent or sibling who has or had cancer, Bereavement. Cancers, Cancer - All in a loved one, Childhood Cancer. The FDA Center for Drug Research and Evaluation (CDER), Center for Biologics Evaluation and Research (CBER), and Center for Device and Radiological Health (CDRH) all support the development and. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. Program awards scholarships of $1000 to fourth year undergraduate and graduate students who have a disability and are pursuing a higher education. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. $2,500 fund to a student with a summer internship in a nonprofit organization that supports direct legal services and/or projects on issues of concern to individuals with HIV or AIDS, anywhere in the country. Program awards a scholarship to student a with significant bilateral hearing loss pursuing higher education at an accredited non-profit school. Provides three $1000 scholarships to individuals impacted by hemophilia or other significant bleeding disorder. Coronavirus disease 2019 (COVID-19) is an emerging infectious disease caused by a newly discovered coronavirus that has reached pandemic proportions impacting millions globally. Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. Program awards scholarships to a high school senior who are patients of Colorado Allergy & Asthma Centers, P.C., for a minimum of one year pursuing higher education. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Program provides scholarships to high school seniors diagnosed with hemophilia A or B. Program provides scholarships to assist people living with cystic fibrosis and those students who are the children of parents with cystic fibrosis (living or deceased) who are pursuing undergraduate and graduate degrees. Scholarships for the Outward Bound intervention and educational programs in the wilderness for at-risk and troubled youth and young adults ages 12-21 years old. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. An educational scholarship for students at University of Wisconsin Madison that have a disability. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, disability, or . I was able to watch . Lupus, Systemic Lupus Erythematosus (SLE). Hearing or Ear Conditions, Hearing Loss, Deafness, Cochlear Implant. Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. Provides college scholarships to talented athletes diagnosed with type 1 diabetes. Applicants must accept their award by Friday . $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. This scholarship is for young women pursuing a STEM major. All other trademarks are the property of their respective owners. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . A scholarship for high school seniors, undergraduates, graduates as well as international students with a documented learning disability. Scholarship awarded to student seeking higher education who have been affected by cancer, either by their own diagnosis or that of a loved one. Scholarships awarded to current or former cancer patients of the Valerie Fund for post-secondary education expenses. Research & Scholarship Overview; Patient Care Research. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers. Program provides financial assistance to children with a physical or psychological disabilities, or in the autism spectrum to help with child-canine services. Program offers financial scholarships and support services to students diagnosed with epilepsy. An educational scholarship for a student or whose loved one is diagnosed with epilepsy or another seizure disorder. Our Rare Disease Policy in Action Program awards a scholarship to the immediate family member of a person with a bleeding disorder. HONcode standard for trustworthy health information: Program provides college scholarships to individuals diagnosed spinal cord injuries, spina bifida, transverse myelitis, neurogenic bladder, or ostomy (ileostomy, colostomy, or urostomy). Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. Communication Disorders, Speech Impairment. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Childhood Cancer, Parent, Family Member, Loved One With Cancer. . "The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share and educate each other about the rare disease experience," said Tim Walbert, chairman, president and chief executive officer, Horizon. Priority consideration will be given to members of a Students for Rare Club or Chapter and first- . We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. 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